Due to the fact that my condition is so very rare and not a lot is known about it the doctors don't know the prognosis, they say with my condition only time will tell as to whether I will get better or not. They have said that they don't know if I will get better or not, or if this is as good as I will get for the rest of my life, how I am just now in the wheelchair and that I would maybe have to get my head round it! Luckily I have.

The doctors said they'd treated one case like mine but not as severe, the person only had one or two symptoms but not all that I had. They said that the person went on to make a full recovery. The doctors have said there is only two other cases worldwide but can't give me any of there details and I have tried to contact them myself but to no avail. Basically I just feel it is seven years down the line I am now nearly 30 and I fell ill when I was 23 and I am no further forward (This was before the new drug I started taking in May last year!). I still have no information. Me and my Mum flew down to London in February 2006 to the National Hospital for Neurology and Neurosurgery where I was seen by a professor. They could not help me.

That is not to say something will come available in the future, technology is evolving all the time, I am a very optimistic person. In May 2006 my family got me a compact, electric wheelchair. It makes an immense difference to my life. I was always adamant from the start that I did not want an electric wheelchair because I saw it then, as me giving up any hope of walking. Now I view that differently and it makes life so much easier for me know. I flew to Malaga in January 2007 and took my electric wheelchair. With everything that I have been through and had to deal with a lot since my life changed, so you could forgive me for being a quiet, shrinking violet type, wanting to hide away from the big bad world out there! But I'm not, far from it. I think that I have done alright considering. I have my own place, I have been to Europe a few times in my wheelchair and America just last year.

I have done an Italian speaking Course, I am on the Management Committee Board of my Housing Association (I am featured in there May newsletter!) and a member of their residents forum, in April 07 I completed a training course to become a volunteer doing advocacy work.
 I have a good network of friends and family. I keep busy as I think this is very important to me and it keeps me sane! I have a good social life, I go out for meals with friends, or invite them round for a drink, I like to go to the cinema, Music concerts, last year I saw, Take That, Pink and Kayne West. I also like going to the theatre, I saw last month Take That the musical! I have seen, Miss Saigon, Oliver Twist, The Wizard of Oz & Fame.

I went last year 08 to T in the Park for the first time ever and loved it! I also seen Oasis at Glasgow SECC in November last year. This month I am going to a pantomime called "The Wizard that never was".

I hope that reading my story helps and reaches other people out there and shows that life does go on you only get one chance at it, so live it to the full as you never know what's round the corner. What I've came to realise is that bad things happen in life and being resentful is pointless, blame again pointless, it's how we react to these things that happen in life that makes us the person we are. What I have learned over the last few years is that life goes on no matter how unfair or unjust it may seem at the time, you just have to learn to live with it. All the best to everyone reading this.