Constant tests, scans and injections, encapsulated with incredible fear

I spent two nights in my local hospital, where they also said I had Labrythinitus and said that I would be more comfortable at home, so they discharged me. I was at home for about a week and I wasn't getting any better. The doctor came out again took one look at me and said 'That's not Labrythinitus' and called me an ambulance. I spent seven months in hospital this time. After the first three months they diagnosed me with a Post Viral Cerebellar Syndrome, other names they have given it are; Opsoclonus-Myoclonus Syndrome, or quite recently in a letter from my doctor he referred to it as a probable Post-Infectious Brain Stem Encephalitis. I believe they are not 100% certain as to what I have actually got. They said at the time when I was in hospital  'It's just a process of elimination with you' . I have basically been tested for every possibility, tests I have had are two MRI scans, two lumbar punctures, I was flown to a London hospital for a PET scan, chest x rays, an HIV test, even a 5 day course of pumping immune-globin into me via a drip and a 5 day course of steroids. I was on medication (mainly vitamins) but have not been on any medication since June 2003. None of the medication that I was given has made any difference at all to my condition, so it was stopped. 
                                                                            

After almost eight months I was released from hospital, although the long time I had spent in hospital was very scary and daunting for me and could be described as my worst nightmare at times. I had went into hospital able-bodied and now I was confined to a wheelchair with a variety of other problems, and I need  to have care staff, but I was just so glad to be going home, albeit it wasn’t the life that I had been used to for twenty three years. I slowly came round to realising my life now was very different from before and I would have to adapt and accept the big changes and challenges in order to move on.